Some people stay bedridden for decades with this. It has been compared to AIDS in the 1980s. Roughly 25-30 million people have it worldwide. It’s a spectrum illness, so mild to severe for the most part.

I was very severe for a while, which means being spoon-fed, unable to tolerate light and sound, constant symptoms, severe fatigue, and the list goes on. Just pure suffering all day with eyes closed. So I’ll take my current health over that any day. Again, there is no approved treatment or cure.

Maybe I’ll write about my suicide attempt in 2019. I’m not sure if I could or should or would want to. But who knows? Anyway, I can make my own meals now mostly, although the rest of the time I’m in bed—which is good for writing and social media and being glued to my phone all day. Ha.

P.S. I have online bedridden friends with the same lame illness. Patients all over the world bedridden. I would have never have known this part of life existed for some people if I wasn’t ill myself. Pretty surreal at times. I manage, though.